With the acceleration of population aging in China, the number of elderly patients with chronic heart failure (CHF) has been increasing year by year. Chronic heart failure is one of the leading causes of death among the elderly. Family caregivers are the main force currently responsible for caring for heart failure patients, bearing multiple responsibilities such as daily care, health management, and emotional support. Facing long-term, high-intensity caregiving, caregivers endure significant physical and emotional burdens. This paper aims to review the concept, influencing factors, and interventions for the burden on caregivers of elderly patients with heart failure, in order to provide clinical guidance for alleviating caregivers' burden.

Can Zhi, Xiaoqing Wang, Chenying Wang, Hongwen Li. The Research Progress on Caregiver Burden in Elderly Patients with Chronic Heart Failure. Academic Journal of Medicine & Health Sciences(2025), Vol. 6, Issue 4: 1-6. https://doi.org/10.25236/AJMHS.2025.060401.

[1] Writing Committee Members, ACC/AHA Joint Committee Members. 2022 AHA/ACC/HFSA Guideline for the Management of Heart Failure[J]. J Card Fail,2022,28(5): e1-e167.

[2] Groenewegen A, Rutten FH, Mosterd A, et al. Epidemiology of heart failure[J]. Eur J Heart Fail,2020,22(8):1342-1356.

[3] CASSIDYL, HILLL, FITZSIMONSD, et al. The impact of psychoeducational interventions on the outcomes of caregivers of patients with heart failure: a systematic review and meta-analysis[J]. International Journal of Nursing Studies,2021,114:103806. 

[4] Riegel B. Dickson VV, Lee CS, et al. A mixed methods study of symptom perception in patients with chronic heart failure[J]. Heart Lung,2018,47(2):107-14.

[5] Hanon O, Belmin J, Benetos A, et al. Consensus of experts from the French Society of Geriatrics and Gerontology on the management of heart failure in very old subjects [J]. Archives of cardiovascular diseases, 2021, 114(3): 246-259. 

[6] Yin Rongping, Gu Rong, Hu Anni, et al. Influence of filial piety values on care-giving burden among caregivers of patients with chronic heart failure[J].Chinese Journal of Modern Nursing, 2019,25(22):2847-2850.

[7] Toth P P, Gauthier D. Heart failure with preserved ejection fraction: disease burden for patients, caregivers, and the health-care system [J]. Postgraduate Medicine, 2021, 133(2): 140- 145.

[8] Zhu Meihua, Sun Lichun. Influencing factors of psychological detachment and its correlation with caregiver burden in caregivers of cancer patients[J].Chinese Journal of Modern Nursing, 2018,24(18):2132-2135.

[9] GRAD J,SAINSBURY P.Problems of caring for the mentally ill at home[J].Proceedings of the Royal Society of Medicine,1966,59(1): 20-23.

[10] HOENIG J,HAMILTON M W.The schizophrenic patient in the community and his effect on the household[J].Int J Soc Psychiatry, 1966,12(3):165-176.

[11] Zarit SH,Todd PA,Zarit JM. Subjective burden of husbands and wives as caregivers:a longitudinal study[J]. Gerontologist,1986,26(3): 260-266.

[12] Ghasemi M, Arab M, Mangolian Shahrbabaki P. Relationship between caregiver burden and family functioning in family caregivers of older adults with heart failure [J]. Gerontol Nurs. 2020;46(6):25-33.

[13] Wang Zhen, Chen Guanran, Dong Yanli. Analysis of burden of family caregivers and its influencing factors in elderly patients with chronic heart failure [J].Chinese Journal of Modern Nursing, 2019, 25(4): 501-504.

[14] Wei S, Miranda JJ, Mamas MA, et al. Sex differences in the etiology and burden of heart failure across country income level: analysis of 204 countries and territories 1990-2019[J]. Eur Heart J Qual Care Clin Outcomes. 2023 Nov 2;9(7):662-672.

[15] ROSENDE⁃ROCA M,CANABATE P,MORENO M, et al. Sex, Neuropsychiatric Profiles, and Caregiver Burden in Alzheimer′ s Disease Dementia:A Latent Class Analysis[J].J Alzheimers Dis, 2022,89(3):993⁃1002.

[16] Hu X, Hu X, Su Y, et al. Quality of life among primary family caregivers of patients with heart failure in Southwest China[J]. Rehabil Nurs. 2018;43(1):26-34.

[17] Hu X, Huang W, Su Y, et al Depressive symptoms in Chinese family caregivers of patients with heart failure: a cross-sectional study[J].Medicine. 2017;96(13):e6480.

[18] Nicholas Dionne-Odom J, Hooker SA, Bekelman D, et al. Family caregiving for persons with heart failure at the intersection of heart failure and palliative care: a state-of-the-science review[J].Heart Fail Rev. 2017;22(5):543-557.

[19] Metin ZG, Helvacı A. The correlation between quality of life, depression, anxiety, stress, and spiritual well-being in patients with heart failure and family caregivers[J].Turk J Cardiovasc Nurs. 2020;11(25):60-70.

[20] Farajzadeh A, Akbarfahimi M, Maroufizadeh S, Et al. Factors associated with quality of life among caregivers of people with spinal cord injury[J]. Occupational Therapy International, 2021,2021:9921710.

[21] Hayashi E, Mitani H, Murayama H, et al. Characterizing the role of, and physical and emotional burden on caregivers of patients with heart failure: Results from a cross-sectional survey in Japan [J]. Geriatric nursing, 2021, 42(2): 379-385.

[22] TANG Y, HUA Y, HUANG X, et al. Psychological burden of patients with head and neck cancer undergoing radiotherapy and their family caregivers: a cross-sectional survey[J]. J Multidiscip Healthc,2023,16:927-935.

[23] Bidwell JT, Vellone E, Lyons KS, et al. Caregiver determinants of patient clinical event risk in heart failure[J]. Eur J Cardiovasc Nurs. 2017;16(8):707-714.

[24] BURTON A M,SAUTTER J M,TULSKY J A, et al. Burden and well-being among a diverse sample of cancer, congestive heart failure, and chronic obstructive pulmonary disease caregivers[J]. J Pain Symptom Manage,2012,44(3):410⁃420.

[25] Halm MA, Bakas T. Factors associated with caregiver depressive symptoms, outcomes, and perceived physical health after coronary artery bypass surgery[J]. J Cardiovasc Nurs. 2007 Nov-Dec;22(6):508-15.

[26] NEMCIKOVA M,KATRENIAKOVA Z,NAGYOVA I.Social support,positive caregiving experie-nce, and caregiver burden in informal caregivers of older adults with dementia [J]. Front Public Health,2023,11:1104250.

[27] SHOKRGOZAR S,ROUZBEHAN V,ZARE R, et al.Evaluation of patient social support,caregiver burden,and their relationship with the course of the disease in patients with bipolar disorder[J].Int J Soc Psychiatry,2022,68(8):1815⁃1823.

[28] Hu X, Dolansky MA, Hu X, et al. Factors associated with the caregiver burden among family caregivers of patients with heart failure in southwest China[J]. Nurs Health Sci. 2016 Mar;18(1):105-12.

[29] Cameron Jill I, Gignac Monique A M. “Timing It Right”: a conceptual framework for addressing the support needs of family caregivers to stroke survivors from the hospital to the home[J]. Patient Edu Couns,2008,70(3):305-314.

[30] Wang Chunxia, Qian Qian. Effects of family-centered care on negative emotion and quality of life in patients with acute coronary syndrome based on "Timing It Right"[J].Chinese Journal of Modern Nursing,2018,24(25): 3034-3039.

[31] Tan Yanqing, Liu Xiulan. Observation on the application of family nursing model based on the timing theory in acute myocardial infarction[J].Chinese Journal of Practical Nursing,2017,33(36): 2814-2818.

[32] Yu DS, Qiu C, Li PWC, et al. Effects of dyadic care interventions for heart failure on patients' and caregivers' outcomes: A systematic review, meta-analysis and meta-regression[J]. Int J Nurs Stud. 2024 Sep;157:104829.

[33] Yang W, Cao Y, Li Y, et al. Effectiveness of a family customised online FOCUS programme aimed on building resiliency in dyad relationship to support dyadic illness management in persons with heart failure and their informal caregiver: a randomised clinical trial protocol[J]. BMJ Open. 2022 Jul 27;12(7):e061405.

[34] G S, Tan WA, Lee ARYB, et al. Behavioral Interventions for the Patient-Caregiver Unit in Patients with Chronic Heart Failure: A Systematic Review of Caregiver Outcomes[J]. J Multidiscip Healthc. 2022 Apr 29;15:921-939.

[35] Cooney TM, Proulx CM, Bekelman DB. Changes in Social Support and Relational Mutuality as Moderators in the Association Between Heart Failure Patient Functioning and Caregiver Burden[J]. J Cardiovasc Nurs. 2021 May-Jun 01;36(3):212-220.

[36] VELLONE E,CHUNG M L,ALVARO R,et al.the influence of mutuality on self‐ care in heart failure patients and caregivers: a dyadic analysis [J].J Fam Nurs,2018,24(4):563‐584.

[37] Zhang X, Sun M, Hu Y, et al. A study on the effect of transitional care intervention in family caregivers of patients with chronic heart failure[J].Journal of Nursing Administration. 2023, 23(08):608-612.

[38] Liu, LS, Song D, Fan J. The application effect of the transitional care model in family caregivers of patients with chronic heart failure[J]. World Latest Medicine Information Abstracts.2019 19(96), 298-300.

[39] Stene GB, Hauken MA, Ahmedzai HH, et al. Integration of palliative rehabilitation in cancer care: a multinational mixed method study[J]. BMC Palliat Care. 2024 Nov 18;23(1):267.

[40] Ng AYM, Wong FKY. Effects of a Home-Based Palliative Heart Failure Program on Quality of Life, Symptom Burden, Satisfaction and Caregiver Burden: A Randomized Controlled Trial[J]. J Pain Symptom Manage. 2018 Jan;55(1):1-11.